Just For The Holl of It: I’m Not the Milk & Cheerios in Your Spoon
Saturday, October 18th, 2008Array ;)BTW, I just love the way you can obfuscate perl code into complete and utter unreadability with such ease.
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The water commissioner says we CAN’T water any more than every three days, and only on designated days depending on our street address. Therefore we can’t water any less than every three days to save even more water (and money, since they’re raising water prices this year).But enough about the grass. I again was reading my humor book and laughing, or at least quietly chuckling, out loud.Well, we didn’t get out until about 5:00 and, knowing my wife for more than a couple of years, I knew she wasn’t going to be able to find anything to cook at that late date, so we went out to eat on the way home. Some of you kind folks on this mailing list don’t have the complete story of how I found about my disease and exactly what I have. I know that one of our long time friends didn’t know anything about my disease until my Adventure e-mail showed up in her in-box (sorry, Kathy).I have chronic lymphocytic leukemia (CLL). Eventually folks with the disease die of anemia and infection.My dad had this disease as well and he died of it in 1981. CLL is not really hereditary, though folks with a close relative with the disease have a three times as great a chance of getting it than the general population. The disease is more common in men than women, more common in whites than blacks or Hispanics. The general background incidence is only 3/100,000 people (or about 1/30,000) so even with a relative with the disease, a person’s chances of getting it are pretty small. I also sent then a bunch of tubes of blood which they are using in some sort of esoteric studies of genes, etc.I actually found out about the disease quite by accident, like most folks do. Actually, I wasn’t getting a routine blood test, but had been feeling very ill for a couple of weeks after getting an immunization for hepatitis A, since Kathy and I go to Mexico a couple of times a year. A few days after getting the shot I started feeling sick and I got progressively weaker over the next two weeks with a mild hepatitis (caused by the shot?). There are lots of treatments out there for this disease, but no cure yet.As I mentioned before, we debated a bone marrow transplant procedure but couldn’t find a match among my sibs (hey, maybe I need to look up the milkman’s offspring [just a joke, Mom]). CLL is considered to be aggressive if your white count doubles in a year’s time.
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(I feel I must explain some of these side issues in some detail, because, though my Colorado friends know what this is all about, the messages are also going to Georgia, Oklahoma, New Mexico, Montana, Texas, South Carolina, California and to friends in Germany, too)So after I finished the lawn work I took a bath and wrote a letter to you guys. I joked with my doc that I must be in the placebo control arm of the study since I continue to feel so normal. These studies have shown some pretty good response rates (partial or complete remission), much better than many standard drugs which often have less than a 20% response rate or so.The best response was in a study from M. There the response rate was 90 percent, an astounding rate (but this is still in a small study of about 130 patients). Of these, about 66% had a complete response, or a normalization of the blood counts, and of the 66% complete responders, about half had no genetic evidence of disease at the end of the short, 18 month study. There were only two early deaths reported in this study, as opposed to the 25% mortality rate from bone marrow transplant, much better odds I think, at least in the short run.So, that’s where we’re headed. The next thing I have to do is get a blood count in about 7-10 days, and see where my Ralph (low point, or nadir)* count is, the we get ready for round two, starting August 20th and going through the 23rd, our which will be our Thirty-Third wedding anniversary!
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Even though the entire place was small and did not change much year to year to year it was always magical.!!!! The big kids ate at one table the little kids at another. How about all those 28 de Julio celebrations and the kids from the town came parading with lanterns. And one more memory, what about when Gabriel was hooked on Cat Stevens Tea for a Tillerman and played my tape player over and over again.
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Time: 3:58 in the P.M.I’m Wearing: Red Planet Hollywood Nashville shirt and shorts w/ flip flops.My Hair Is: Down and scrunchedI Last Ate: Oatmeal for breakfast.Holly’s Song Pick of the Day: Naked–Avril Lavigne________________________________________________________So, the other day I went to Clarkston during a huge storm, and we had to take an alternate route so that we didn’t get in a large traffic jam on I-75. When I was about ten years old, I decided that I liked to eat starchie foods like mashed potatoes, stuffing and corn. But I ate them constantly, and I ate very much at one time. I might be a Seventh Day Adventice or whatever they’re called, since I don’t believe that God wants us to eat meat.2. I think (or hope) everyone lives their lives based on a certain set of morals, and we’ll all be rewarded for living by those morals someday. Sure, we can do things to influence our lives and the way we live them, but I think God has the major say in what’s gonna go down. I believe that God strategically places them right where people (and animals) need them, when they need them.5 totally random things about me1. This morning, I burned the roof of my mouth by eating scorching oatmeal.
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